Genomic data-sharing: what will be our legacy?

Genomic data-sharing: what will be our legacy?

Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share with future generations. This has significant implications for the advancement of genomic science, a...

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing

Prospects have never seemed better for a truly global approach to science to improve human health, with leaders of national initiatives laying out their vision of a worldwide network of related projects. An extensive literature addresses obstacles to global genomic data sharing, yet a series of public polls suggests that the scientific community may be overlooking a significant barrier: potenti...

What is and what will be

This version of What is and what will be has images distributed throughout the text as visual poetry. The images were mostly taken at Esalen Institute near Big Sur California and at my home in the Santa Cruz Mountains near San Jose California. The dolphin pictures and a few others were taken in Hawaii. The images in this version are formatted at 72 dots per inch. This is suitable for viewing on...

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Leaders Prion diseases: what will be next?

In recent history there is probably no group of disease that has caused more surprises or shocks than the group of transmissible spongiform encephalopathies, or prion diseases as they have become known. Grouped together on the basis of their neuropathology, showing vacuolation of the neuropil or neurones, or both (spongiform change) (fig 1), they present a variable clinical picture; nevertheles...